Please help!!! We are looking for families who have a child suffering from a combination of atrioventricular septal defect (AVSD) and peripheral pulmonary stenosis to better understand treatment options.
Our precious baby girl was born with both atrioventricular septal defect (AVSD) and peripheral pulmonary stenosis. Her doctors are planning to do a Balloon catheter treatment at the beginning of June to enlarge the stenosis. However, this combination of diseases is extremely rare and we are worried about unpredictable complications that may occur during treatment.
We scoured the relevant medical literature and could only find one similar case in the medical literature, and so we are turning to social media and this website to search for families who have had similar experiences! We would like to hear from you about your experiences and the treatments you used, and how effective those treatments were. If you think you have any relevant information, we would be so grateful if you could contact us! Thank you in advance for your help!!!
We are a family from Japan with our first child who we love very, very much and we would be so grateful for your help!!!